Friday, May 25, 2012

Another day...

...Mini and I were back at the hospital yesterday...for an MRI and check up...

 ...as most of you know, Mini had a bone marrow transplant from an unrelated donor curing her of Sickle Cell Disease in January 2011.
 ...what you may not know, bone marrow transplants are very complicated and dangerous procedures...the most dangerous period is after receiving the bone marrow.  Mini had two rounds of chemo which totally knocked out her immune system.  Leaving her open to all types of infections and illness that our bodies usually fight off...
...even her immunizations were knocked out...so, yesterday she got her second round of immunizations...just as a new born baby would...We began the paperwork needed to finally meet her donor.  Hopefully this will happen before the end of the year.

Mini also had an MRI of her brain...I remember her first MRI...she was so little they had to put her to sleep just to keep her still...yesterday she went into the tube 30 minutes, all alone...All I could think was how far she has come...with the grace of GOD!  ...and he is not done yet...GOD is still showing off when it comes to Mini...smile.

As for me, being in the hospital all day yesterday really bought on a lot of anxiety.  How did I do this every 3 weeks for the past 8 years?  Exhale.

16 comments :

  1. Our God is an awesome God! I thank him for your blog among the many other things that bring a smile to my face:)

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  2. Oh, Nyree...you made my day...blessing to you and your family.

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  3. As the mom to 5 kiddos, two from Africa, I found your blog when we were waiting to hear about the kids' medical information, but I remember reading about Mini's journey and knowing that regardless if they had sickle cell or not there was so much hope for them. In the end, they were both negative, but it wouldn't have mattered if they were positive. They are the joy in our lives and we are so grateful to have them.

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    1. Wow...Jess, thank you so much for sharing your story. Mini will be so happy to hear how her story is touching people...blessings to you and your family.

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  4. She is such a young lady now! They grow so fast.

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    1. love you guys...have a great weekend...and don't forget to take pics...

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  5. Cause you got it like that...Happy Friday to you and Mini.
    God Bless you both.

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    1. ...and you know that...lol. Blessings...

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  6. You and Mini are inspirational in so many ways. You both deserve the best. Thank you.

    Look at those nails...hot...

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    1. Hey Sandra,

      thanks girl...blessings.

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  7. I follow your blog for some time now, but never wrote. I love your home design style! It's pretty much what I like for my own home.


    But today I'm writting because I feel like sending you a big hug. :)

    We don't know how strong we are until being strong is the only choice we have. - unknown

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  8. Thank you Teresa, for following my blog and leaving such a wonderful comment...I'm feeling the love all the way from Portugal...blessing to you and your family.

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  9. M heart aches when I see things like this. Im glad though MiMi is doing well! God Bless her!

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    1. Thank you Tami...It's hard, but we are grateful to be doing it every 3 months instead of every 3 weeks...sigh.

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  10. Your story blesses me. I'm thankful for your testimony and I will continue to pray for you and Mini. Thank you.

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    1. .....thank you for letting me know that our story touches you...and thank you for your prayers...they are working...

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Live the life you dream about...I dare you.

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